Venture Galleries Blog for Readers and Writers

Last One Chosen

Persons with Alzheimer's, the forgotten two-percenters?

 

 

 

 

 

 

 

 

In the United States, approximately two percent of the population has Alzheimer’s disease.  That’s 6,000,000 people.

Let me put it in perspective for you. The number of  persons diagnosed with this dread disease in America alone equals the combined populations of Chicago and Los Angeles.  In my home state of Texas, this number represents all the inhabitants of Houston, Dallas, San Antonio, Austin and Fort Worth.

And that is just the tip of the iceberg. For every person diagnosed, another three people at least are directly touched.  These three persons are family members, friends, caregivers.  In other words, Alzheimer’s disease impacts at a minimum something in excess of twenty million Americans.

Take all those cities listed above and add New York City.

It is an enormous epidemic.

Who are the persons with AD?

They are the salt of the earth.

They are the mothers who sat up all night with fever-ridden children and applied cold compresses to our heads, the fathers who coached little league baseball teams, the men and women of the Greatest Generation who fought against tyranny, the teachers who taught us reading and writing and arithmetic.

Alzheimer’s is an equal opportunity killer.  It reaches out its tentacles to the poor, the middle class, the rich.  It strikes down leaders like Ronald Reagan, entertainers like Glen Campbell, and that vast horde of everyday people whose names are known only to those who love them. 

The great majority of its victims are people in their golden years, the persons who reared the post-World War II generation now known as the baby boomers. The BBs have come to know Alzheimer’s up close and personal.  They have seen their parents waste away.  They have seen the toll AD takes on a spouse,  how it zaps the life energy out of a precious caregiver who sits next to a lifetime companion as he or she fades into the night.  The BBs have reached into their pockets to pay for in-home care, nursing homes.  They have spent what resources they have to provide for their loved ones.

Believe me.  I know.  I saw it destroy my mother.

Why then does Alzheimer’s remain a hidden disease?  Why is it relegated to the back rooms of our collective conscience where it beats against a locked door attempting to make its voice heard?

The answer is simple:  Alzheimer’s scares us to death.

September is Alzheimer’s awareness  month.  it is the time each year when local and national Alzheimer’s organizations organize walks and rallies and try to get the word out, the time when these groups appeal for funds and volunteers.  Please take the time to contact The Alzheimer’s Association or the Alzheimer’s Foundation of America or a local group that labors in the field of Alzheimer’s awareness.

Please  lend your voices to these precious two-percenters.  They have already given themselves for us.

(Stephen Woodfin is the author of The Warrior with Alzheimers: The Battle for Justice.)

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  • http://twitter.com/CalebPirtle Caleb Pirtle

    These are the two percenters who make up the saddest and loneliest segment of our population. Given the choice between Alzheimer’s and dying, people will choose dying every time.

    • http://www.venturegalleries.com Stephen Woodfin

      Caleb, that is sad but true. The really sinister thing about it is that people don’t have the choice not to endure it. They hope against hope that a cure for them will surface before it’s too late, and then, too late, they find themselves in the belly of the beast.

  • http://twitter.com/jackdrsm Jack Durish

    I’m certifiably strange. I laugh when injured. I joked my way through a stroke. (Confused the hell out of the EMT’s) But, AD terrifies me. Not just that I might be a victim some day, but that someone I know and love might be afflicted. Thus far, no, thank God. If someone has a fortune and wants to fund research, let this be their beneficiary.

    • http://www.venturegalleries.com Stephen Woodfin

      Jack, it is truly a terrifying thing. I didn’t cite the projected statistics for the next ten to fifteen years, but suffice it to say that unless we see a major breakthrough on the medical science front, Alzheimer’s will grow at a staggering rate as the baby boomers move into advanced age.

  • writinggroove

    I had no idea how large the percentage was and it astounds me. You’re right, I think, it is the terror of AD that makes us hid our head in the sand. We BBs watch our parents anxiously for any sign and our own lost thoughts and memories create fear that it may overtake us. I’m glad you brought it to our attention. We need the research desperately. I’m sorry for your mother’s and your family’s struggle. I will definitely put AD on my charity list now.

    • http://www.venturegalleries.com Stephen Woodfin

      Thanks so much. We have to all pitch in and do what we can to help find a cure.

  • http://twitter.com/jvonbargen Jo VonBargen

    My Mother, too, had Alzheimer’s. It’s such a tragic thing for all involved. I think this issue takes a back seat in our society just like all mental aberrations and disabilities do. There seems to be a “shame” stigma attached – for what reason I have no earthly idea. Ours being an ego-driven society, perhaps it is fear of disclosing imperfections which might alter people’s perceptions of ones so afflicted. This, in effect, isolates both the victim and the caregiver at a time when community support would be of great value. Thanks for posting this; there certainly does need to be more awareness and more funds for research.

    • http://www.venturegalleries.com Stephen Woodfin

      Jo, you are right about the shame thing. I have seen it so often. Once a person detects that someone in the room may have AD, he shuns that person, apparently believing that if he pretends AD doesn’t exist, it will never come calling at his house. One of the first steps in gaining the research funding necessary to find a cure is to bring the disease out in the open. A person doesn’t lose her worth when she suffers Alzheimer’s. This is a lesson Americans have yet to learn.

  • http://twitter.com/maryannwrites Maryann Miller

    Any kind of dementia is horrible as it steals our loved ones from us while they are still alive. My father was never officially diagnosed with Alzheimer’s, but he had all the symptoms, loops of questions and comments, not recognizing people, forgetting that he was a musician and played guitar. IIt was so hard to watch him fade into that nether world.

    • http://www.venturegalleries.com Stephen Woodfin

      It is a heartbreaking disease.